Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and informaiton, links, message boards. KidsHealth: Cystic Fibrosis - Learn more about this condition, the causes, and what it is like to live with CF. Leven met Cystic Fibrosis - Stelt zich tot doel "het verhogen van de kwaliteit van leven van patiënten met Cystic Fibrosis en het vergroten van de naamsbekendheid van Cystic Fibrosis" Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format Boomer Esiason Foundation: What is Cystic Fibrosis? - Description of the symptoms of CF, causes, treatments, and current research and searrch. Stichting Ouderen en Cystic Fibrosis - Voor volwassen CF-patiënten, hun partners, broers en zussen, met als doel onderling ervaringen uit te wisselen via een mailinglist. Howard Hughes Medical Institute - HHMI investigators have been involved in many important recent advances, from the discovery of genes approximate to cystic fibrosis, obesity, and added diseases, to new insights about how human cells develop or communicate. Respiratory Medicine - Includes information on asthma, copd, cystic fibrosis, telemedicine, spirometry, scientific publications, meetings and pulmonary medicine. UK Cystic Fibrosis Gene Therapy Consortium - A consortium whose aims are to provide cystic fibrosis gene therapy updates to researchers, medics, patients and their families. The International Nurse Specialist Group/Cystic Fibrosis - Includes objectives, constitution, officers, events, meeting archives, and discussion forum. Genetic Disorders: The Links to Diet - Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis. Cell Science - Alphabetical lists of treatment centers, research institutes, charities and hospitals in the areas of AIDS/HIV, diabetes, cystic fibrosis and cancer. Road Hockey London - Official site about annual three-on-three tournament with registration data, rules and pictures from the tournament that raises money to support cystic fibrosis research and examine. Thorpe, P. H. - Studies of Cystic Fibrosis gene therapy. From the University of Edinburgh in Scotland. Howard Hughes Medical Institute - Biomedical research and investigate, grants. HHMI investigators contributed to the discovery of genes akin to diseases such as cystic fibrosis and obesity, and to basic understanding of cell development and communication. Scientists are employed by HHMI and conduct their work at HHMI facilities at leading research institutions nationwide. Web site has extensive news and information on recent research findings. Plourde, Norma Kennedy - Cystic Fibrosis, Genealogy, Kennedy in particular, and alternative family lines, Rheumatoid Arthritis, and Lac Baker, New Brunswick. English/Français. Sarah Yourman - A young girl with Cystic Fibrosis and Diabetes that loves competitive skiing, mogul runs, and gymnastics. Journal of Cystic Fibrosis - Official bimonthly publication of the European Cystic Fibrosis Society, devoted to promoting the research and treatment of this disease. Free abstracts available. Pennsylvania Cystic Fibrosis - Dedicated to education and information for those interested in CF. The Telegraph: Alice Martineau - 'Pop singer dies after valiant battle with cystic fibrosis'. Includes details of her daily routine of oxygen, chest physiotherapy, intravenous antibiotics and taking 40 pills a day. |